www.alphanet.org
ALPHANET is a not-for-profit organization dedicated to improving the lives of individuals affected by Alpha-1 Antitrypsin Deficiency. Organized and run entirely by Alphas, AlphaNet develops and offers a wide range of specialized programs and services designed to prevent the development of disease, improve the quality of life, and efficiently manage health resources for individuals with Alpha-1. AlphaNet provides support services directly to other Alphas, and also provides specialty-approved education programs for nurses, physicians and respiratory therapists. This organization is also committed to providing significant financial contributions to research and to improving the public’s understanding of Alpha-1 by helping in the management of clinical research studies.
www.haea.org
Hereditary Angioedema (HAE) is a rare disorder that results from a genetic deficiency of the blood-based protein C1 inhibitor. The United States Hereditary Angioedema Association is a non-profit patient advocacy organization dedicated to expediting US approval of safer and more effective HAE therapies. HAEA also provides a wide range of services that include clinical trial placement, physician referrals, education and individualized patient case management.
www.prolastin.com
Prolastin® is used for alpha1-antitrypsin (AAT) deficiency in adults with emphysema. Since 1988, physicians and patients have relied on Prolastin® as a critical part of the total treatment regimen. This website provides in-depth information on AAT, its treatment with Prolastin®, how to manage AAT and how Prolastin® can help.
www.talecrisdirect.com
Talecris Direct is a unique service that includes both Prolastin Direct and Gamunex Direct. These services are designed to help patients get the Prolastin® and Gamunex® they need - delivered to the location of their choice -- providing patients with coordinated nursing services, including infusion services, and reimbursement assistance, if necessary. Coordination of reimbursement and pharmacy services are handled directly by Centric Health Resources.
www.pemphigus.org
Pemphigus is a group of rare autoimmune blistering diseases of the skin and/or mucous membranes. In an autoimmune disease, the body's immune system attacks its own organs or tissues by producing autoantibodies (antibodies against the self). The International Pemphigus and Pemphigoid Foundation provides patients and doctors worldwide with information about pemphigus and pemphigoid, and to provide patients and their caregivers much needed comfort and support so they can continue to live active, productive lives.
www.HepaGamB.com
HepaGamB The first intravenous hepatitis B immune globulin approved by the FDA for the prevention of HBV recurrence following liver transplantation and now available through the Centric Health Resources In-Home AfterCare Access Program. Distributed by Apotex Corp. Manufactured by Cangene Corporation.